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Caring For an Aging Parent

April 9, 2008

I could use some advice as I don't know where to start. My parents are aging and live in a different state. My mother has cancer and my father is showing signs of dementia (and is extremely difficult). I'm in contact with my mother frequently, but she refuses to admit she needs help. When I go to visit them I wind up in tears on the flight home because I feel so helpless. Can anyone recommend a website or reference book to help with aging parents?

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I know this is becoming an issue for many other baby boomers. I've approached the conversation about finances and their wishes, but I get yes and no answers for a variety of reasons. Their not eating well, the house is dirty, I'm not sure my mother is bathing herself.. my father forgets what he did 5 minutes ago.. and the list goes on. Anyone who has suggestions or ideas. My family would really appreciate some guidance. Thank you.

Maggie from VA

Answers

April 9, 20080 found this helpful

You could try to find a community based home health agency in their area, maybe start with the local Health Department, or a local hospital, they should be able to quide you, there are often various programs for seniors that need help staying in their own homes.

 

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April 9, 20080 found this helpful

It appears that your parents need 24 hour care/supervision.
I would advise you to check the cost for nursing home care against inhome care. Either way it is going to be expensive. Don't ever turn their house or valuables over to a nursing home. Appoint someone in the family to be the executor of their estate and pay monthly for their care if you choose this method.

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If you decide to try the inhome care, the Senior Citizens Center has Meals on Wheels in our town which provides one healthy meal a day and nursing homes usually have an inhome assistant to help with bathing, light household chores and there are some restrictions as to what they can do to help your parents stay in their home. They also work a few hours in the day, so many times a week.

You would need to hire several people to do inhome care if you have them stay 24-7 to give time off and decide if you pay them part time, then step up the amount of people you hire.

You could also hire a responsible person (check their credentials well) to live in their home and provide the help your parents need. Working through an agency if someone cannot make it that day to your parents home, there's usually a replacement for them, so they still get the care they need and you want for them.

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Since your mother has cancer, have you spoke with anyone from the hospice program or the hospital? They could direct you toward right places to get further suggestions.

If you are not able to care for your parents yourself which helps to save some larger expenses, perhaps you and your family members could divide time in the year equally to keep your parents together and have them move in with you or you go there for when your time comes around.
Your parents would feel safer having family members do the care more than strangers in their home. This is a lot of adjusting.

This is a very hard time for you and I really feel for all your concerns. I've had elderly friends and worked in a nursing home setting a lot of years and I know what you are up against. It's hard to let go of home and having things the way they always were. My best to you.

 

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April 9, 20080 found this helpful

Another idea is to find someone to live with them rent free in exchange for some care. Is there a nursing program near you? a student nurse would be a good choice. She would be there at night, when dementia often peaks. Check with meals on wheels and also te local division of aging, or a social worker from the nearest hospital.

 
April 9, 20080 found this helpful

Hi Maggie,
I work in Home health and believe it could benefit your parents greatly. Many times the reason that people are reluctant to accept help is because they think that someone will come into their home and find out that they can't take care of themselves and they will be placed in the nursing home. It is a valid concern. But if your parents are homebound or even just one of them, Home health services would be paid for under their medicare benefit.

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HH can provide an aid for bathing, nurses for med mgt and teaching, therapy if they need it. Also if they qualify for the medicare waiver program it pays for respite care, sitters, housecleaning and even some shopping. If either of your parents are Vets they will qualify for even more benefits.

What you need to do is research HH's in their area and then call them they can tell you about all their services. After that call their MD and discuss it with him or her. If your mother has terminal cancer she may be eligible for hospice services.

The goal of all these programs is to keep people in their homes as long as possible. I think that if you explain it to your mother in that way she will come around. Make sure that you and your HH are all on the same page so that communication stays open.

 

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April 11, 20080 found this helpful

A warning about getting help for your parents around the home. Do your absolute best to find someone you can TRUST to come into their home. I had a friend who's mother made a living as a live-in caregiver to the elderly & I heard through her daughter (I didn't know her mom) that her mother, this live-in "helper" was sometimes stealing money from the very people she was watching, especially the ones who were forgetful & would leave money laying around & forgot where it was.

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She was no teenager, but in her 50's or 60's & also called herself a Christian, but when they turned their backs she was stealing money (& who knows what else!). A sad, sad thing. I'm not trying to scare you, I just felt the need to at least warn you. This may be more prevalent than we like to think. Maybe a secret video camera hooked to the Internet so you could do some checking up on the person caring for them? I hate to go a "Big Brother" on you, but if it were my mom, I may just do something like that. At least make sure the caregiver is licensed & bonded.

* To find a good caregiver I'd first call the wonderful volunteers at HOSPICE as they are hooked in to a group of wonderful organizations that may be of help in finding someone to help bath & feed your parents & make sure they get to doctors visits.

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* An idea, that may or may not work for you, if you need extra money to care for your parents & their home is paid for you can probably get a reverse mortgage on the home (if you still want to keep it for them while they are living). Some "reverse mortgage" places are on the up & up & some are rip-offs & charge fees & interests that are way to high, so DO YOUR HOMEWORK if you choose this option.

* Sadly, you may need to get a legal "Power of Attorney" so you can take care of your parents bills. Make sure to talk it over with other family members first. If not an actual financial Power of attorney, you might need a MEDICAL power of Attorney.

If you mother is in her right mind & WANTS to sign a a Medical Power of Attorney, stating who will make medical decisions for her when she can't, here's a FREE MEDICAL POWER of ATTORNEY link. Just print it out, & have her sign it then take her to a bank so you can have it notarized. I don't know if your dad's signature would be legal since he seems to not be able to make proper choices these days.

FREE MEDICAL POWER of ATTORNEY FORM:
www.expertlaw.com/.../medical_power_of_attorney.html

You may need an attorney to handle these things for you, but another warning: I had a client (I was painting a mural at her house) & she was looking for a lawyer to write her will for her. When she called her regular lawyer they wanted $750 to write up a simple will, so I told her about a good lawyer I knew that ran a small office with his wife as his assistant & guess what she DID have my lawyer write her will & it only cost her $75. a BIG savings! So do some calling around & there's a BIG difference in what each lawyer charges, & don't go for the one with the biggest add in the yellow pages! Hope I've helped, more than frightened you.

 
By DEBRADJ. (Guest Post)
April 11, 20080 found this helpful

Believe it or not there is a dummies book on elder care. You can also try googling your parents state department of aging and talking with them. These people should be able to give you good advice. Also remember, if whether using a nursing home or home care always, always check out the facility or the agencies you are working with. The state dept of aging can help with that also. Elder abuse is rampant in the u.S. So err to the side of caution when choosing. I know it sounds tough.

I worked for a nursing home for 20 years but when your parents come to the point where they need help its up to you. Just make sure caution is your watch word. The department of aging can help when you either find a facility or a caregiver. That's part of their job. When you do finds something always make sure you keep in contact with the agency or the nursing facility. Let them know you want to be involved closely with the care your parents are getting.

 
By Jean (Guest Post)
April 11, 20080 found this helpful

Contact the local area agecny on Aging where your parents live. They should be able to help you, or at least provide direction. I work for a PA AAA & do this all the time.

 
April 11, 20080 found this helpful

I work for our local Area Agency on Aging, so of course this question popped out at me. Every state must have Area Agency on Aging according to the Older American's Act. Search the net for contact information in your parent's home state. Contact the most local office for assistance & guidance. Nursing home placement is not always the best option - more & more alternatives for home care are being introduced. Your parent's situation is a risky one & I know it's hard to live so far away. Any other family members near them to keep an eye on them while you make arrangements? Or were they involved in a church that can provide temporary help? One thing you don't want to do is allow the risk to get so bad that adult protective services become involved. Good luck. I am located in south central PA if I can be of any help.

 
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November 5, 2008

This is a random question for this website, but I'm starting to get a bit desperate. My elderly mother has had her license revoked, but refuses to stop driving. (She's prone to strokes, disorientation, has severe mobility problems, and horrible reflexes). We'd take her car away, but she lives alone and not having a car there would make the house look abandoned. She refuses to move to assisted living.



We also need to be able to use the car when either of my siblings or I come to check in on her (she's more comfortable getting in and out of her car than ours). We've tried taking the keys, and she had the dealership come out to make copies. We've tried disconnecting the battery, and she called AAA. She lies to anyone who is willing to help her get the car running.

We're afraid she's going to kill someone, or herself. In short, we need to disable the car for her but not for us. Has anyone else had this kind of problem, and how on earth did you work with it? Thanks for any advice.

Beth

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November 14, 2008

What are some things I can do to help my elderly patents? I have rearranged their kitchen to make it easier.

I take them to all their appointments. Does anyone have any other helpful ideas? Thanks.

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August 1, 2010

Two of three sisters were given power of attorney for their mother. Now the mother wants to see documentation of her money, bills, and bank statements presented in a simple way so she can understand what she has left and how it is being saved and managed.

It is OK for the 3rd sister to see if the mother wants her to be there. Is this a question the parent can ask along the way and a presentation should be provided to anyone in the meetings? She would like the 3rd daughter to also be aware of what is left since she does the most for her now and has no idea of what her own mother has to spend.

By Ginny from Oak Park, CA

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September 2, 2010

Anyone out there taking care of an elderly parent? My mom lives an hour away from me. I spend 4-5 days a week staying at her home taking care of her, the house, the yard, etc. She is 87 and in poor health. She seems to have the beginnings of dementia and her legs are swollen from edema. Her diet is horrible. Well, she will eat what I make, but only drinks coffee.

My sister comes when she can, but she lives 2 and 1/2 hours away and works, too. I was the one that was always here, then when my dad passed away 7 years ago I started staying with her every other week for 3 days or so. I was here to shop, eat out, and talk.

She started with slight incontinence about 4 years ago and hasn't been out since. She will not see a doctor. She hasn't since I was a teen and I am now 58. She can barely stand and walking is getting harder and harder for her. She'll use a cane, but not the walker I got her. I can't remember the last time she showered. I got a shower chair, but still no shower. She barely even washes up anymore. I am at my wits end.

She spends most of the day and night in a chair. Getting her into bed, to get her off her buttocks, is a constant struggle. She falls asleep and tips out of the chair. She sometimes falls when walking. God is on her side because she hasn't broken anything yet.

If anyone has had similar experiences, please write. I feel so alone. My poor husband is getting upset. He just can't understand why I can't just tell her she has to move in with us. She will not accept outside help. If I could get her to accept an aide once in awhile, it would help so much. Please contact me through Thriftyfun. You can click on my name and an email message window will open.

I have found a few message boards, but everyone there seems to think they are doctors with the advice they give. Or just plain mean. She's my mother, I still must treat her like my mother and not some child off the street. I love her, but I am so stressed out. I have my own health problems, too. Please help if you can. Regards.

By valery from Cranford, NJ

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September 2, 2010

I am a caregiver for my dad who is ninety. He is in good health, but needs help with a lot of things. Sometimes I just feel so overwhelmed with things. Any hints or suggestions?

 
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September 13, 2010

My mother has brain cancer and the doctors removed the first tumor which damaged her short term memory, eyesight, and her brain does not acknowledge the right side of her body. She used to make doilies, but gets confused. All she does now is sit and smoke. Books do not work because she forgets what she just read. Mom is only 64 and has always been active. How can I help her? She gets tired quickly.

By Theresa craig from Daingerfield. TX

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